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Epilepsy and Incontinence
A poll to find out how epilepsy affects you in regard to incontinence.
What is your Gender
- Male
- Female
What is your age
- Less then 5 years old (please ask a parent or guardian for permission to fill this poll in, and for help with answering the questions or leave)
- 6 - 7
- 7 - 8
- 8 - 9
- 9 - 10
- 10 - 11
- 11 - 12
- 12 - 13
- 13 - 15
- 15 - 20
- 20 - 25
- 25 - 30
- 30 - 40
- 40 - 45
- 45 - 50
- 50 - 60
- Older Please specify
- Do not wish to say
Do you have Epilepsy
- Yes
- No (Please leave)
- No but I am answering for a child or disabled person with Epilepsy
What type of Epilepsy do you have
- Absence
- Peti-Mal
- Partial
- Myoclonic
- Mytonic
- Grand-Mal
- Tonic Clonic
- Cognitave
- Sleep seizures
- Frontal Lobe
- A Tonic
- A Clonic
- A Typical Absence
- Lennox Gastaut Syndrome
- Rasmussen Syndrome
- Psychogenic Seizures
- Reflex Epilepsy
- Emotional Seizures
- Temporal Lobe Seizures
- Complex Partial
- Dravet Syndrome
- Other Please Specify
Do you have any other medical condition or disability, other than epilepsy, that renders you incontinent
- Yes Please specify
- No
If yes does your incontinence affect you
- I am not incontinent
- I am only incontinent during seizures
- Light leakage
- Moderate Leakage
- Heavy Leakage
- Severe Leakage
- Total leakage, (no control)
Does your incontinence affect your bladder or your bowel.
- Bladder
- Bowel
- Both
Do you use any form of protection
- Small Pads
- Medium sized pads
- Large Pads
- Water proof mattress protector
- Chux
- Adult Diapers
- Youth Diapers
- Childrens Diapers
- No
Are you able to change yourself after an accident
- Yes
- Yes but need help
- No I need to be changed by someone else
If no, who changes you
- Mother
- Father
- Brother
- Sistor
- Friend
- Trusted Adult
- Nurse
- Support worker
- School Nurse
- Carer
- Teacher
- Therapist
- Other Please Specify
- I can change myself
If you are incontinent how does having a seizure affect your incontinence
- Makes it worse
- Stops me having an accident
- Guarantees I will have an accident
- Don't know
If you are not incontinent, does having a seizure make yo loose bladder or bowel controal
- Yes Bladder Controal
- Yes Bowel Controal
- Yes Both
- No
How often do you loose control of your Bladder or Bowel during a seizure
- every day
- several times a week
- once or twice a month
- three or four times a year
- every time I have a seizure
- I don't
How often do you have a Seizure
- over 100 a day
- 50 - 100 a day
- 1 - 50 a day
- 50 - 100 a week
- 1 - 50 a week
- 2 - 3 a month
- Don't know
- Other Please Specify
If you loose Bladder or Bowel control during a seizure, do you use any kind of protection
- small pads
- medium sized pads
- large sized pads
- waterproof mattress protector
- chux's
- Adult Diapers
- Youth Diapers
- Childrens Diapers
- Other Please Specify
- No
How long do your seizures last
- Constantly having seizures 24/7
- More than an hour Please Specify
- Half an Hour
- 20 Miniutes
- 15 miniutes
- 10 miniutes
- 5 miniutes
Do you have one seizure followed by another
- Yes
- No
- Don't Know
If you loose bladder or bowel control during a seizure and use protection, are you able to change yourself after the seizure ends.
- Yes
- Yes but I need help
- No I need to be changed by someone else
If no who changes you
- Mother
- Father
- Brother
- Sistor
- Nurse
- Paramedic
- Support Worker
- Carer
- Theripist
- Doctor
- School Nurse
- Teacher
- Friend
- Trusted Adult
If you wear diapers because of your epilepsy, what type do you use
- Tenna
- Attends
- Lille
- Molicare
- ComiDry
- Tranquility
- Store own brand (adult or youth diaper)
- Good nites
- Underjams
- Prevail
- Luvs
- Pampers
- Huggies
- Store own brand (children's diaper)
If you wear Diapers for your epilepsy, please describe how people react when they see you having a seizure and notice you wearing a diaper.
If you don't wear diapers for epilepsy or do not know how people react to you in this situation, just type N/A
This has happened to me many times in the past.
Have you ever had a seizure and come around from it to find that you are in hospital, lying in bed with the rails up and wearing a wet and soiled diaper.
- Yes
- No
What is your opinion of hospital staff you leave unconscious patients in wet and soiled diapers after a seizure.
Do you think hospital staff should change patients before they come around from a seizure or after.
Do you think the majority of patients who require an incontinence brief for epilepsy, would have the capability to change themselves after a seizure.
Please make your answers to the three parts of this question brief and to the point.
No more then three sentences per section.
What is the most embarrassing situation you have been in regarding epilepsy and incontinence
Do you have any warning when you are going to have a seizure
- Yes
- No
If yes please describe how you know when you are going to have a seizure and what you do.
If no just type N/A
When you have a seizure are you incontinent
- Before the seizure starts
- During the Seizure
- After the Seizure
(A rather dramatic question but I am curious)
How do you feel about having your diaper changed and bottom wiped by someone else after soiling yourself during a seizure.
Please describe how this makes you feel.
I personally hate this.
Aside from incontinence, what other symptoms do you have either after a seizure or as a result of your epilepsy.
If you do not wish to say, just type N/A